4th International
Consensus Meeting
on Robin Sequence
April 2nd, 3rd 4th 2025
Imagine Institute – Necker Universitary Hospital
24 boulevard du Montparnasse, 75015 Paris, France
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Véronique Abadie, Jeanne Amiel, Brigitte Fauroux, Véronique Soupre et Arnaud Picard are pleased to welcome you to Paris for the 4th international consensus meeting on Robin Sequence.
Since our first meeting in Utrecht, 10 years ago, we have progressed toward a consensus on several points for children with Robin sequence (RS). We have agreed on RS definition and investigation. Several points remain debatable, for instance airway obstruction assessment and treatment, orofacial growth, etc. Other issues remain unclear, such as physiopathology, genetic bases, etc.
This conference is an opportunity to continue thinking together and sharing our expertise and research results.
We hope to see many of you at this 4th meeting from April 2nd evening.
With our kind regards
Meeting organisation

Pr Véronique Abadie
General Pediatrics Department- Necker University Hospital
Reference Center for Rare Disease
“Robin sequence and congenital troubles of sucking and swallowing”
Paris Cité University

Pr Jeanne Amiel
Genetics Department – Necker University Hospital
Embryology and genetics of malformation lab – Imagine Institute
Paris Cité University

Pr Brigitte Fauroux
Sleep study and ventilation unit – Pneumopediatrics
Necker University Hospital
Paris Cité University

Pr Arnaud Picard
Maxillo-facial surgery Unit
Necker University Hospital
Paris Cité University

Dr Véronique Soupre
Maxillo-facial surgery Unit
Necker University Hospital
Paris Cité University
Replay of the
4th International Consensus Meeting on Robin Sequence
01 – Introduction
Pr Véronique Abadie
02 – Prenatal imaging
Judy A Estroff, Tiana Rasoarahona, Laurent Salomon,
David Grevent, Jeanne Amiel, Tania Attié-Bitach,
Véronique Abadie, Briac Thierry, Maelys Leger, David Grevent,
Jeanne Amiel
03 – Post-natal imaging- interests and technics AM
Cornelia Wiechers, Hossein Khonsari, Quentin Hennoch, Olivier Lienhard, Khalid El Ghoul, Michael Barbour
04 – Post-natal imaging: interests and technics PM
Marcus Vinicius, Martins Collares, Silvia Mueller-Hagedorn, HyeRan Choo, Hossein Khonsari
05 – Free communications
Roseli Maria Zechi-Ceide, Nancy Vegas, Helen Robson,
Cory Resnick
06 – Evaluation of respiratory obstruction
Brigitte Fauroux, Christian Poets, Laurianne Coutier,
Sonia Khirani, Corstiaan Breugem
07 – Treatment
Catherine de Blacam, Pauline Adnot, Brigitte Fauroux, Roberto Flores, Eppo Wolvius
08 – Physiopathology, nutrition, surgery, etc…
Laurianne Coutier, Luc Marlier, Koen Joosten, Corstiaan Breugem
09 – Network for rare diseases
Nicolas Leboulanger, Irene Mathijssen, Delphine Vissac, Fernando de Pablo Cabrera









