4th International
Consensus Meeting
on Robin Sequence

April 2nd, 3rd 4th 2025

Imagine Institute – Necker Universitary Hospital 
24 boulevard du Montparnasse, 75015 Paris, France

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Véronique Abadie, Jeanne Amiel, Brigitte Fauroux, Véronique Soupre et Arnaud Picard are pleased to welcome you to Paris for the 4th international consensus meeting on Robin Sequence.

Since our first meeting in Utrecht, 10 years ago, we have progressed toward a consensus on several points for children with Robin sequence (RS). We have agreed on RS definition and investigation. Several points remain debatable, for instance airway obstruction assessment and treatment, orofacial growth, etc. Other issues remain unclear, such as physiopathology, genetic bases, etc.
This conference is an opportunity to continue thinking together and sharing our expertise and research results.

We hope to see many of you at this 4th meeting from April 2nd evening.

With our kind regards

Meeting organisation

Pr  Véronique Abadie

General Pediatrics Department- Necker University Hospital
Reference Center for Rare Disease
“Robin sequence and congenital
troubles of sucking and swallowing”
Paris Cité University

Pr Jeanne Amiel

Genetics Department – Necker University Hospital
Embryology and genetics of malformation lab – Imagine Institute
Paris Cité University

Pr Brigitte Fauroux

Sleep study and ventilation unit – Pneumopediatrics
Necker University Hospital
Paris Cité University

Pr Arnaud Picard

Maxillo-facial surgery Unit
Necker University Hospital
Paris Cité University

Dr Véronique Soupre

Maxillo-facial surgery Unit
Necker University Hospital
Paris Cité University

Replay of the

4th International Consensus Meeting on Robin Sequence

01 – Introduction

Pr Véronique Abadie

02 – Prenatal imaging

Judy A Estroff, Tiana Rasoarahona, Laurent Salomon,
David Grevent, Jeanne Amiel, Tania Attié-Bitach,
Véronique Abadie, Briac Thierry, Maelys Leger, David Grevent,
Jeanne Amiel

03 – Post-natal imaging- interests and technics AM

Cornelia Wiechers, Hossein Khonsari, Quentin Hennoch, Olivier Lienhard, Khalid El Ghoul, Michael Barbour

04 – Post-natal imaging: interests and technics PM

Marcus Vinicius, Martins Collares, Silvia Mueller-Hagedorn, HyeRan Choo, Hossein Khonsari

05 – Free communications

Roseli Maria Zechi-Ceide, Nancy Vegas, Helen Robson,
Cory Resnick

06 – Evaluation of respiratory obstruction

Brigitte Fauroux, Christian Poets, Laurianne Coutier,
Sonia Khirani, Corstiaan Breugem

07 – Treatment

Catherine de Blacam, Pauline Adnot, Brigitte Fauroux, Roberto Flores, Eppo Wolvius

08 – Physiopathology, nutrition, surgery, etc…

Laurianne Coutier, Luc Marlier, Koen Joosten, Corstiaan Breugem

09 – Network for rare diseases

Nicolas Leboulanger, Irene Mathijssen, Delphine Vissac, Fernando de Pablo Cabrera